Still Waiting...

After a week of scans and waiting, we still have no answers. Kenzi had her MRI on Tuesday, and after that, they decided to cancel her PET scan and do a CT instead. I don't actually know the difference between them all, but I guess the CT would show more of what they were looking for. We had the long awaited phone meeting with our doctor and clinical nurse yesterday (Friday), but still have no answers. The scans showed that the tumour shrank some, but not as much as they had hoped. They did show that the tumour appears to be changing from a solid mass to fluid, which most likely means the chemo is working and the tumour is dying. They had their meeting with the tumour board and surgeons, but after discussing it, they decided they want more opinions before they make a decision on how to proceed. They are talking to more surgeons from the adult oncology department, because they have more experience with tumours in the chest (apparently they aren't that common in children) and they are trying to get her case discussed when they have their meeting on Monday. In the meantime, they might bump up her next round of chemo while we wait for surgery. This is the round they would give after surgery, not one that's added on. As for radiation, we won't know for sure whether she will need it or not until after surgery, depending on how much of the tumour they can remove. This is a lot of info, but leaves us with more questions than answers right now, which is frustrating. For the time being we are enjoying some time at home in Vernon, which is a rare treat. We are hoping for a phone call next week and need to be ready to head back to Vancouver quickly to possibly start chemo. 

This week has been hard on Kenzi. I (Monica) headed home with the 3 youngest kids on Sunday, while Wes stayed with Kenzi for her scans. She had to get an IV in for the CT scan and needles are always the hardest part for her. As they were driving home on Wednesday, she told Wes that she didn't actually want to come home to Vernon. She realized after the last time how hard it is to leave. It was an emotional first day, but she's settling into life back at home. At least we have more than 2 days this time. 

Please continue to pray for us as we wait. We are struggling to be patient with no answers and last minute changes, but it's just part of our life right now. Please pray for Kenzi, that she'll find peace and enjoyment being at home, even though she can't do a lot of the things she loves (swimming is a big one). Pray for the doctors, that they will come up with a clear plan to remove her tumour. And please pray for us when we head back to Vancouver; leaving home is probably one of the most difficult things to do. We love you all and are thankful for each and every prayer sent up on our behalf. For that and all the support, we can never thank you enough ❤

Be still before the Lord and wait patiently for Him ~ Psalm 37:7
Family fondue night

Playing with their birds (Blueberry is landing on Ayden's head)


Comments

  1. We continue to pray for patience for you all, and continued blessings of peace as you wait for answers.
    ( If the bird poops on Aydens head, in some cultures that means good luck😉)

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  2. I don't think any of us can really know the depth of emotions that you all have, but you are never far from our thoughts and prayers. May God grant you all peace as you journey together.

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  3. The rollercoaster journey of dealing with cancer is exhausting, and a great test of peace/patience. You all continue to be in our prayers. Praying you are all filled with joy/peace/patience/strength and so much more for this difficult journey.

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